Understanding and Supporting Individuals with FASD: Everyone Plays a Part

By Heather Lacey

As the Executive Director of ABLE2, I feel a personal duty to keep advocating for people with disabilities and to use my platform to shed light on the realities they encounter every day. As September is FASD Awareness Month it is especially important to me to highlight the challenges and needs of those with Fetal Alcohol Spectrum Disorder (FASD). 

FASD is a lifelong disability that affects the brain and body of individuals exposed to alcohol in the womb. Each person with FASD has both strengths and challenges and will need special supports to help them succeed with many different parts of their daily lives. 

Despite affecting 4% of Canadians— approximately 1.5 million people— FASD remains significantly underrecognized and underdiagnosed, leading to a critical gap in support and services for those affected and their families. (Source: Canada FASD Research Network

FASD is often misrepresented due to its complex nature. Its symptoms frequently overlap with other conditions such as ADHD, Autism, and learning disabilities, making accurate diagnosis challenging. Furthermore, the absence of distinct physical features in most individuals with FASD contributes to its invisibility. However, a person with FASD may face significant cognitive and behavioural challenges. 

The lack of awareness and training among healthcare providers, educators, and social service workers exacerbates the difficulties. It is imperative that we, as a society, become more actively informed and bring more awareness, so that those with FASD can receive appropriate support and services that carry on into adulthood.

At ABLE2, we provide comprehensive support to children, youth, and individuals with FASD through our Fetal Alcohol Resource Program. This program offers community navigation and educational resources to help individuals with FASD and their families navigate the complexities of this lifelong condition. 

ABLE2 also offers FASD training to service providers and frontline workers, so that they can provide FASD-informed interventions to their service users. Our support group, facilitated by experienced professionals, provides a safe space for individuals and their caregivers to share experiences and strategies for managing daily challenges.

Supporting individuals with FASD is not just a moral imperative; it is also a societal necessity. Without appropriate support, individuals with FASD are at a higher risk of encountering difficulties in education, employment, and interactions with the criminal justice system. There is a growing need for FASD-informed services across various sectors, including social services and the criminal justice system, to ensure that individuals with FASD receive the understanding and accommodations they need to thrive.

As we approach FASD Awareness Month, it is vital that we continue to raise awareness about FASD and advocate for the necessary resources and support systems. By doing so, we can help individuals with FASD lead fulfilling lives and contribute meaningfully to our communities. We invite you to join ABLE2 in fostering a more inclusive community for those living with FASD, and their families. Everyone plays a part in shaping an equitable future for all.

Published by

Heather Lacey

Experienced Non-Profit Executive Director

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